e PSP Question (highlighted yellow if prioritised to a top ten question) interventio, AC Planning

Tags: Marie Curie, funded, Research Councils, Text Green, Question Number, Grant Titles, dementia, charitable funders, NHS Foundation Trust, palliative care, Amount, Text Blue, systematic review, Queen's University Belfast, UCL, intervention, University of Edinburgh, University of Nottingham, cancer patients, King's College London, severe dementia, cluster randomised trial, Bangor University, De Montfort University, communication, Leeds Teaching Hospitals NHS Trust, Foundation Trust, feasibility study, University of Leeds, University of Hertfordshire, Imperial College Healthcare NHS Trust, Northumbria Healthcare NHS Foundation Trust, University of Glasgow, project, randomised trial, Bradford Teaching Hospitals, Hull and East Yorkshire Hospitals NHS Trust, Hertfordshire Partnership University NHS Foundation Trust, Grant Titles Grant Titles, Bradford District Care Trust, Cardiff University, University of Southampton, East Yorkshire Hospitals NHS Trust, Lancashire Teaching Hospitals NHS Foundation Trust, Grant Titles Investigating, delirium, Royal Surrey County Hospital NHS Foundation, Parkinson's disease, cluster randomised controlled trial, Liverpool Care Pathway, liver disease, motor neurone disease, Birmingham Community Healthcare NHS Trust, King's College Hospital NHS Trust, pancreatic cancer, University Hospitals Coventry, bereavement support, Bradford Teaching Hospitals NHS Foundation Trust, stroke care, continuing care, Cambridgeshire Community Services NHS Trust, University Hospital Southampton NHS Foundation Trust, NHS Cambridgeshire, palliative care patients, University of Wales, Cardiff, Grant Titles Neighbourhoods, Dementia Care, Amount Amount, acute hospital care, End-of-Life Care, community care, Social Care Trust, University of Supporting Excellence, coordinated care, Grant Titles Grant, University Hospital Southampton NHS Foundation, Marie Curie Dementia Research Programme, Timely Formal Care, qualitative study
Content: indirect Amount weak Amount total funding
direc t Amount
Amount
interventional
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
What are the best ways for
Care and communication between health professionals
healthcare professionals to
and patients affected by severe or chronic illness in
tell patients, carers and
community care settings: A qualitative study of care at
families that a patient's
the end of life (University of Nottingham)
12 Ј635,693 5 Ј425,084 Ј1,139,606
1 Ј78,829
Ј0
0
Communication
illness is terminal and also
explain the dying process
1
compassionately and
honestly? Can literature,
including leaflets, be
helpful? Who is the best
person to provide this
information and
communication?
How can carers and
Community-based Volunteer-led Support for Family
1 Ј9,138 4 Ј341,249 Ј355,906
families of people at the
Caregivers Caring for a Relative or Friend with Palliative
1 Ј5,519
2
end of life be supported to communicate better with
0
Ј0
and/or End-of-Life Care Needs at Home (Co-Care) (University Hospital Southampton NHS Foundation
each other and their loved
Trust)
one?
Care and communication
After the Liverpool Care Pathway ­ What next for
between health
people with dementia? (UCL)
professionals and patients
affected by severe or
Deciding not to dialyse in advanced chronic kidney
chronic illness in community
disease - Health related quality of life, decision making,
care settings: A qualitative
costs and impact on carers (Queen's University Belfast)
study of care at the end of
life (University of
Supporting Excellence in End of life care in Dementia
Nottingham).
(SEED programme) (Northumbria Healthcare NHS
Foundation Trust)
Decision making about
implantation of cardioverter
End of life care in advanced Chronic Obstructive
1
defibrillators (ICDs) and
Pulmonary Disease (COPD): identifying, understanding
deactivation during end of
and meeting the changing care and support needs of
life care (Newcastle
patients and their carers (University of Cambridge)
University)
Advance Decisions: Informing implementation
What are the benefits of
CAPE study. Community
strategies through interdisciplinary and cross-national
24 Ј4,465,882 28 Ј4,407,627 Ј10,089,317
Advance Care Planning
cAre Pathways at the End of
dialogue (University of York)
3 Ј234,801 10 Ј991,007
and other approaches to
life: mapping the pathways
3
listening to and
to improve care (NHS
Promoting informed decision making and effective
incorporating patients'
Cambridgeshire and
communication through advance care planning for
preferences? Who should
Peterborough CCG).
people living with dementia and their family carers
implement this and when?
(Queen's University Belfast)
Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) Decisions: Evidence Synthesis (University of Warwick)
Between patient autonomy and physicians responsibility to save life: The implementation of advance directives in three European countries (England, France, and Germany). (University of Oxford)
Evaluation of patient preferences for and cost effectiveness of community intravenous antibiotic services (Leeds Teaching Hospitals NHS Trust)
The delivery of chemotherapy at home: an evidence synthesis (University of York)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
direc t Amount
interventional Amount
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
7 Ј765,503 1 Ј77,012 Ј1,469,165
What are the best
approaches to giving
medicines, such as
morphine, in a patient's
home, for example using
different cannulas such as
4
BD-saf-T-intima? What are
the pros and cons of
training carers, families and
non-palliative
professionals, such as
healthcare assistants, to
give these medicines?
1 Ј99,274
A phase I-II feasibility trial of Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at end of life (University of Southampton) Supporting Excellence in End of life care in Dementia (SEED programme) (Northumbria Healthcare NHS Foundation Trust) The Marie Curie Dementia Research Programme: developing an intervention to improve end of life care in advanced dementia (UCL)
3 Ј527,376
Improving the Management of Pain from Advanced Cancer in the Community (IMPACCT) (Leeds Teaching Hospitals NHS Trust) Self-Management of Analgesia and Related Treatments at the End of life (SMARTE) (University of Leeds) The delivery of chemotherapy at home: an evidence synthesis (University of York) Pain assessment and management for patients with advanced dementia nearing the end of life (Queen's University Belfast) Advance Decisions: Informing implementation strategies through interdisciplinary and cross-national dialogue (University of York) The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL)
Psychosocial Therapy to
The MARQUE project: Managing Agitation and Raising
Benefit Patients with
QUality of Life. A project to improve quality of life in
Parkinson's-related
people with moderate or severe dementia (UCL)
Managing symptoms and medications 4 Ј790,346 19 Ј3,888,382
Dementia: A Feasibility and
Exploratory Pilot Study
Promoting informed decision making and effective
(Manchester mental health
communication through advance care planning for
and Social Care Trust)
people living with dementia and their family carers
(Queen's University Belfast)
2
Support at Home -
Interventions to Enhance
EFFECTIVE HOME SUPPORT IN DEMENTIA CARE:
Life in Dementia (SHIELD)
COMPONENTS, IMPACT AND COSTS OF TERTIARY
(North East London NHS
PREVENTION (Pennine Care NHS Foundation Trust)
What is the best way to
Foundation Trust)
give palliative care to
Carer and patient-led development of
22 Ј4,220,068 6 Ј824,091 Ј9,722,887
patients with dementia and
recommendations for people with dementia returning
their carers and
home from hospital: understanding what is important
5
families? This includes
(University Hospitals Coventry and Warwickshire NHS
communicating about their
Trust)
diagnosis when they are
being cared for at home
ACTIFCare: ACces to Timely Formal Care (Bangor
or elsewhere?
University)
Risk Communication in Dementia Care (Ulster University)
Living well with dementia (Bangor University)
An international collaboration to explore person centred approaches to dementia and the role of relationships in post diagnostic support. (University of Edinburgh)
Dementia and imagination: connecting communities and developing well-being through socially engaged visual arts practice (Bangor University)
Individual Cognitive Stimulation Therapy for dementia (iCST Trial) (UCL)
A pragmatic randomised controlled trial to evaluate the effectiveness and cost effectiveness of Collaborative cARE for people with DEMentia in primary care (CAREDEM trial). (UCL)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
Question Number Theme interventional Amount direc t Amount indirect Amount weak Amount total funding
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
Strategies for managing Behavioural and Psychological Symptoms in Dementia (BPSD) for community dwelling older people: evidence into practice (Hertfordshire Partnership University NHS Foundation Trust)
Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT) (North East London NHS Foundation Trust)
Experiences and understandings of dementia among
Black, Asian and Minority Ethnic (BAME) Groups in
Wales: community, individual and intergenerational
5
perspectives (Cardiff University)
Adaptive Implementation and Validation of the Meeting Centres Support Programme for people with dementia and their carers in Europe (University of Worcester)
A preliminary comparison of wards for people with dementia using patient engagement time with other wards delivering standard care alone (Norfolk and Suffolk NHS Foundation Trust)
An Optimized Person Centred Intervention to Improve
Mental Health and Reduce Antipsychotics amongst
People with Dementia in Care Homes (Oxford Health
NHS Foundation Trust)
What are the best
approaches to providing
pain relief for people who
have communication
difficulties, perhaps as a
6
result of their disease,
such as motor neurone
disease (MND), dementia,
brain tumour (including
glioblastoma) or head and
neck cancer?
Pain assessment and management for patients with advanced dementia nearing the end of life (Queen's University Belfast) The detection and management of pain in patients with dementia in acute care settings: development of a decision tool (University of Leeds)
2 Ј399,855 2 Ј603,908
A Programme for ALS Care in Europe (ALS-CarE) (King's College London) The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL) The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL)
3 Ј437,873 6 Ј759,403 Ј2,201,039
3
Does cognitive behaviour
therapy enhance swallowing
Improvement for Head and Neck Cancer Survivors
outcomes in head and neck
Prophylactic antibiotics to prevent recurrent respiratory
cancer? A feasibility study
infections in high risk children (University of Oxford)
(City Hospitals Sunderland
NHS Foundation Trust)
Innovative gel aid for administering tablets to stroke
and other dysphagic patients (University of East Anglia)
Development and
preliminary testing of a
tailored pre-treatment
swallowing intervention
What are the best ways to
package for patients with
manage the problems
head and neck cancer
associated with difficulty in
(University College London
12 Ј730,574 5 Ј1,041,412 Ј2,127,919
4 Ј283,563 2 Ј72,370
swallowing, including
Hospital NHS Foundation
7
for patients with
Trust)
Parkinson's disease, motor
neurone disease (MND)
Can cueing improve
and dementia who are at
swallowing and prevent
the end of their life?
drooling in Parkinson's
disease? (Northumbria
Healthcare NHS Foundation
Trust)
Resources for Living (R4L) Pilot: Exploring the Potential of Progressive Cuisine for Quality of Life (Newcastle Upon Tyne Hospitals NHS Foundation Trust)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
direc t Amount
Amount
interventional
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
What are the best ways to
Can cueing improve
manage drooling and
swallowing and prevent
1 Ј59,317 0 Ј0 Ј108,679
excessive salivation in
drooling in Parkinson's
Ј0
0
Ј49,362
8
patients with diseases such as motor neurone
1
disease? (Northumbria Healthcare NHS Foundation
disease (MND) who are
Trust)
approaching the end of
their life?
What are the best ways to
A cluster randomised trial of clinically-assisted
0 Ј0 0 Ј0 Ј29,685
Ј29,685
manage respiratory
hydration for cancer patients in the last days of life
Ј0
9
secretions (death rattle) in
0
1
(feasibility study) (Royal Surrey County Hospital NHS
patients at the end
Foundation Trust)
of life?
Pain assessment and
The MARQUE project: Managing Agitation and Raising
4 Ј6,607,637 7 Ј619,448 Ј8,153,003
What are the best ways to
assess and treat
pain and discomfort in
people at the end of life
10
with advanced dementia,
Parkinson's disease
and other diseases that
affect cognition and
communication?
2 Ј399,855
management for patients with advanced dementia nearing the end of life (Queen's University Belfast) The detection and management of pain in patients with dementia in acute care settings: development of a decision
1 Ј526,063
QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL) The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL)
tool (University of Leeds)
Improving the Management
Pain assessment and management for patients with
of Pain from Advanced
advanced dementia nearing the end of life (Queen's
Cancer in the Community
University Belfast)
(IMPACCT) (Leeds Teaching
Hospitals NHS Trust)
Chemical compatibility of drugs administered by
continuous subcutaneous infusion for end of life care
Self-Management of
(University of Liverpool)
Analgesia and Related
4
Treatments at the End of life
The impact of morphine fentanyl or codeine
What are the best ways to make sure that
(SMARTE) (University of Leeds)
(oxycodone) on patient consciousness appetite and thirst (University of Bath)
14 Ј1,107,739 16 Ј1,888,223 Ј4,037,214
palliative care patients
receive adequate pain
11
and symptom relief and
which drugs for pain
management are best in
terms of side-effects,
such as drowsiness?
4 Ј871,292 4 Ј169,960
A phase I-II feasibility trial of Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at end of life.
Understanding prescribing of opioids for chronic, noncancer pain in general practice (NHS Bradford Districts CCG)
(University of Southampton)
The detection and management of pain in patients with dementia in acute care settings: development of a decision tool (University of Leeds)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
Question Number Theme interventional Amount direc t Amount
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
What are the best ways to
manage acute and/or
12
chronic breathlessness in patients with cancer and
non-cancer terminal
illnesses?
4 Ј232,539 5 Ј179,682
Pilot feasibility randomised trial of a novel nonpharmacological intervention for the management of the respiratory distress symptom cluster (breathlessness, cough, fatigue) in patients with advanced lung cancer (University of Manchester) "Does a breathlessness intervention service ('CBIS') reduce stress significantly more than usual care in breathless patients with advanced non-malignant disease and their carers? A phase II feasibility study." (Cambridge University Hospitals NHS Foundation Trust)
A study of quality of care needs for patients with idiopathic pulmonary fibrosis, and their carers, across disease trajectory (Cardiff University) The adaptation and validation of an Assessment Tool to identify the palliative care needs of people with irreversible idiopathic interstitial lung disease for use in every day clinical practice (De Montfort University) The cost-effectiveness of domiciliary non-invasive ventilation (NIV) in patients with end-stage COPD. A systematic review and economic evaluation (University of Birmingham) A randomised controlled trial in patients with respotory muscle weakness due to MND of the NeuRX RA/4 diaphragm pacing trial (University of Sheffield) The use of smartphone technology to reduce morbidity and mortality in ALS (Kings College London)
17 Ј2,567,957 12 Ј1,356,100 Ј4,336,278
Prospective randomised trial evaluating the efficacy of local anaesthetic thoracoscopy and talc slurry pleurodesis (TAPPS) (University of Bristol)
A randomised trial of high
versus low intensity training
5
in breathing techniques for
breathlessness in patients
with malignant lung disease:
early intervention (Hull and
East Yorkshire Hospitals NHS
Trust)
0 Ј0 2 Ј105,130 Ј105,130
What are the pros and cons
13
of withdrawing MST (morphine sulphate) in
people at the end of life?
Which sedative drugs (such as midazolam,
haloperidol and levomepromazine) are most
14
beneficial for managing agitation at the end
of life and which are best in
terms of sideeffects?
Do these drugs have an
effect on
other symptoms?
1
0
Ј6,000
Ј0
Palliative pharmacological sedation for symptom relief in terminally ill adults (University of Bath)
1
0
Ј26,685
Ј0
A cluster randomised trial of clinically-assisted hydration for cancer patients in the last days of life (feasibility study) (Royal Surrey County Hospital NHS Foundation Trust)
0 Ј0 1 Ј16,695 Ј49,380
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
Question Number Theme interventional Amount direc t Amount
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
What are the best ways to
diagnose and treat
15
delirium, agitation,
distress, and restlessness in
people at the end of life?
The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL) The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL) Pilot trial of Stop Delirium! A complex intervention to prevent delirium in care homes for older people (Bradford District Care Trust)
3 Ј927,069 6 Ј1,140,213
A randomised trial of high versus low intensity training in breathing techniques for breathlessness in patients with malignant lung disease: early intervention (Hull and East Yorkshire Hospitals NHS Trust) Development and validation of the 4AT: a new rapid screening tool for delirium (University of Edinburgh) Strategies for managing Behavioural and Psychological Symptoms in Dementia (BPSD) for community dwelling older people: evidence into practice (Hertfordshire Partnership University NHS Foundation Trust) Evaluating the effectiveness and cost effectiveness of Dementia Care Mapping (DCM) to enable person- centred Care for people with dementia and their carers: A UK cluster randomised controlled trial in care homes (DCM EPIC trial) (University of Bradford)
20 Ј1,587,962 18 Ј2,816,434 Ј6,471,678
Investigation of the Delirium
An investigation of the Hospital Elder Life Program
Observation Screening Scale
(HELP) system of care in NHS acute trusts to prevent
for the routine detection of
delirium (Bradford Teaching Hospitals NHS Foundation
delirium in care homes by
Trust)
care home staff (Bradford
Teaching Hospitals NHS
MICA: Development of a software application for
Foundation Trust)
detection and monitoring of attentional deficits in
delirium (University of Edinburgh)
How can distress that is not
The MARQUE project: Managing Agitation and Raising
related to pain be
QUality of Life. A project to improve quality of life in
best assessed and
people with moderate or severe dementia (UCL)
3 Ј382,325 1 Ј152,189 Ј1,060,577
Ј526,063
managed in palliative
6
Ј0
16
patients
0
1
The MARQUE project: Managing Agitation and Raising
with dementia, Parkinson's
QUality of Life. A project to improve quality of life in
disease and other
people with moderate or severe dementia (UCL)
diseases that affect
communication?
What are the benefits and
A cluster randomised trial of
limitations (physical,
clinically-assisted hydration
social, psychological) of
for cancer patients in the
5 Ј778,025 5 Ј259,578 Ј1,067,288
providing artificial
last days of life (feasibility
Ј0
0
Ј29,685
17
hydration and nutrition (for example, a drip) to
1
study) (Royal Surrey County Hospital NHS Foundation
patients at the end of life,
Trust)
including those with
bowel obstruction? When
should this be done?
Telehealth in Motor
Body composition and metabolic profile of children with
What are the best ways of
Neurone Disease (University of Sheffileld)
end stage liver disease before and after liver transplant; relations with outcome and cell energy controlling metabolic pathways (King's College Hospital NHS Trust)
3 Ј418,870 3 Ј312,782 Ј857,499
managing cachexia
(weight loss) in palliative
18
care patients, including
people with cancer or
2
Ј63,647
2011 AIIHPC Doctoral Fellowship: Developing a Cancer Cachexia Rehabilitation Intervention
2
Ј62,200
Myosteatosis and muscle wasting in pancreatic cancer: murderer, mediator or mirror? (University of Edinburgh)
motor neurone disease
for People with Inoperable
(MND)?
Advanced Non Small Cell
Lung Cancer (Ulster
University)
2 Ј65,719 0 Ј0 Ј65,719
Ј0
0
Ј0
0
Is it ever necessary to
19
withdraw food and water (non-artificial
hydration/nutrition)?
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
direc t Amount
Amount
interventional
Question Number Theme
1 Ј47,244 2 Ј63,498 Ј129,217
PSP Question (highlighted yellow if prioritised to a top ten question)
Is there an appropriate
time to withdraw artificial
hydration and nutrition (for
example, a drip) and
how can this be done
20
sensitively and
consensually?
What is the best way to
communicate with the
carers and family about
this process?
What is the best diet for
palliative care patients?
For example can
maintaining a healthy
21
weight and
eating fatty or protein-rich
foods have an impact
on their disease
progression?
1 Ј39,116
0
Ј0
Grant Titles Investigating and improving signs and symptoms of chronic kidney disease through a dietetic-led integrated model of care in older people nearing end stage renal disease with the aim of improving patient- centred and medical outcomes in a cost efficient manner (Imperial College Healthcare NHS Trust).
0
1 Ј18,475
Ј0
Grant Titles Decision-making concerning eating and drinking for people with progressive neurological disease with and without decision-making capacity: patient, public, professional and family perspectives (University of Cambridge)
5 Ј923,848 11 Ј1,838,766 Ј2,801,730
When should patients be
(deeply) sedated? What
are the benefits and
22
limitations of sedation and
what are the best ways of
consulting patients,
carers and families?
What are the best
treatments for nausea and
vomiting (including for
23
people with bowel
obstruction and those
having palliative
chemotherapy)?
How is incontinence best
managed in people who
24
are approaching the end of
life (including those
with Parkinson's disease)?
What are the best
treatments for fluid
25
retention in
patients approaching the
end of life?
What are the best ways to
prevent blood clots,
deep vein thrombosis and
26
pulmonary embolism for patients at the end of
life? What is the role of
low molecular weight
heparin (LMWH)?
0
0
0
0
0
Ј0
Ј0
Ј0
Ј0
Ј0
1
0
2
1
0
Ј291,189
Ј0
Ј86,632
Ј26,685
Ј0
7 A cluster randomised trial of clinically-assisted hydration for cancer patients in the last days of life (feasibility study) (Royal Surrey County Hospital NHS Foundation Trust) Managing Faecal Incontinence in people with advanced dementia resident in Care Homes a realist synthesis of the evidence (FINCH study) (University of Hertfordshire) ICONS: Identifying Continence OptioNs after Stroke (Lancashire Teaching Hospitals NHS Foundation Trust) Improving the prevention and treatment of Venous Thromboembolism in Hospital and the Community (Birmingham Community Healthcare NHS Trust)
5
0
Ј1,134,520
Ј0
1
0
1 Ј37,203 4 Ј167,694 Ј291,529
4 Ј455,512 1 Ј37,500 Ј519,697
4 Ј173,983 1 Ј319,691 Ј493,674
Ј108,576
Ј0
Ј1,534,285
Ј0
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
direc t Amount
Amount
interventional
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
6 Ј857,404 7 Ј1,021,392 Ј1,962,986
How are steroids best used
in palliative care
27
(dose, duration, etc) for patients with different
conditions, including those
with brain tumours?
0
Ј0
2 Ј84,190
CRUK/13/017: A randomized phase II trial of Hippocampal Sparing versus Conventional Whole Brain Radiotherapy after surgical resection or radiosurgery in favourable prognosis patients with 1-4 brain metastases (jointly funded with The Brain Tumour Charity) (UCL) CRUK/07/001: QUARTZ - A phase III multicentre randomised trial to assess dexamethasone +/- whole brain radiotherapy in patients with inoperable brain metastases from non-small cell lung cancer (UCL)
What are the benefits and
CRUK/12/022: Alternative chemotherapy for frailer
limitations of
patients with advanced gastric or oesophageal cancer
chemotherapy and
(GO-2) (University of Leeds)
14 Ј1,883,960 26 Ј4,247,867 Ј6,227,680
1 Ј95,853
radiotherapy for patients
Ј0
0
28
approaching the end of life,
including those with
brain tumours? How can
healthcare professionals
best communicate this?
What are the best ways of
Self-Management of Analgesia and Related Treatments
managing
at the End of life (SMARTE) (University of Leeds)
0 Ј0 0 Ј0 Ј65,582
Ј65,582
1
Ј0
0
29
constipation, including when caused by
medication, such as
opioids?
What are the benefits and
3 Ј144,960 1 Ј43,454 Ј188,414
limitations (physical,
Ј0
0
Ј0
0
30
social, psychological) of
blood transfusions at the
end of life?
Getting down to coping' On-
line self-management after
A pilot RCT of drug treatment for depression in patients
8
treatment for prostate
undergoing Haemodialysis (East and North
cancer: a feasability study
Hertfordshire NHS Trust)
(Sussex Community NHS
Trust)
Screening for depression in South Asian patients with
End Stage Renal Disease: An evaluation of the Beck
An Optimized Person
Depression Inventory-II and the Patient Health
Centred Intervention to
Questionnaire-9 (East and North Hertfordshire NHS
Improve Mental Health and
Trust)
25 Ј3,025,785 34 Ј5,624,513 Ј9,628,965
What are the best ways to
recognise and treat
depression, anxiety and
low mood in people who
are dying? What are the
31
pros and cons of different
psychotherapeutic
interventions, including
2 Ј520,446 7 Ј458,221
Reduce Antipsychotics amongst People with Dementia in Care Homes (Oxford Health NHS Foundation Trust)
Individual Cognitive Stimulation Therapy for dementia (iCST Trial) (UCL) Behavioural Activation Therapy for Depression after Stroke (BEADS): A feasibility randomised controlled pilot trial of a psychological intervention for post-stroke depression (University of Nottingham)
drug therapies, and when is the best time to provide them?
Exploring the cost effectiveness of mindfulness-based cognitive therapy for people living with cancer and their carers (University of Bangor)
A randomised controlled trial to identify if cognitive behavioural therapy delivered by respiratory nurses reduces anxiety and depression in patients with chronic obstructive pulmonary disease. (Newcastle Upon Tyne Hospitals NHS Foundation Trust)
The development of a telephone based therapy for people affected by primary and secondary progressive MS (King's College London)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
Amount
interventional Amount
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
What are the best ways to
treat dry mouth in
32
patients at the end of life, including medications
and foods, such as
pineapple?
1 Ј73,144
Grant Titles A salivary pacemaker in the treatment of radiationinduced xerostomia: a double-blind randomised controlled trial of a novel neuro-electrostimulator of salivary glands (University College London Hospitals NHS Foundation Trust)
0
direc t
Ј0
Grant Titles
0 Ј0 1 Ј5,000 Ј78,144
2 Ј294,184 2 Ј93,282 Ј466,977
What are the best ways to
ensure that people
with motor neurone
disease (MND) receive
33
essential care promptly on diagnosis, when is
the best stage to transition
to palliative care and
when should a "just in case
kit" be considered?
What are the best models
34
of palliative care for people who have learning
difficulties?
What are the best models
35
of palliative care for people who have mental
health issues?
0
0
1
Ј0
Ј0
Ј1,667
Telehealth in Motor Neurone Disease (University of Sheffield)
1
1
1
Ј96,909
Ј90,000
Ј77,844
A Programme for ALS Care in Europe (ALS-CarE) (King's College London) Residential support workers meeting the health needs of older people with learning disabilities: An exploration of their developmental support needs (University of South Wales) The metrics of person-centred care for older people: developing a new care quality measure for community mental health and social care services in later life. (University of Manchester)
3 Ј426,985 4 Ј470,082 Ј987,067
4 Ј1,218,757 14 Ј2,097,473 Ј3,413,139
Does respite for people
9
caring for a family
member or friend who is
4 Ј403,642 2 Ј45,821 Ј449,463
dying benefit the
Ј0
0
Ј0
0
36
patient's care and the
quality of life for both the
patient and carer? What is
the best way to provide
respite?
Support: Carers and families
Trial to evaluate the impact
Family carers' perceptions of their educational needs
of a Carer Support Needs
when providing end-of-life care: a systematic review of
Assessment Tool (CSNAT)
qualitative research (University of York)
intervention in hospice
home care (Cambridgeshire
A feasibility study of early identification, assessment
Community Services NHS
and support for informal carers in primary care
Trust)
(University of Edinburgh)
How can carers and
11 Ј2,168,677 20 Ј2,275,827 Ј4,638,966
4 Ј130,557
1 Ј63,905
families be encouraged to
Cascading knowledge about end of life care at home:
37
seek support for
the development and piloting of a training programme
themselves at the right
for those who help carers and a carer resource pack
time?
(University of Nottingham)
Supporting family carers to enable patient discharge from acute care at end of life: qualitative study with carers and professionals to adapt evidence-based carer assessment to acute care settings (University of Manchester)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
Question Number Theme interventional Amount direc t Amount
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
A phase I-II feasibility trial of Cancer Carer Medicines Management (CCMM): an educational intervention for carer management of pain medication in cancer patients at end of life. (University of Southampton)
Family carers' perceptions of their educational needs when providing end-of-life care: a systematic review of qualitative research (University of York) A study of quality of care needs for patients with idiopathic pulmonary fibrosis, and their carers, across disease trajectory (University of Wales, Cardiff)
A feasibility study of early identification, assessment and support for informal carers in primary care (University of Edinburgh)
Supporting family carers to enable patient discharge from acute care at end of life: qualitative study with carers and professionals to adapt evidence-based carer assessment to acute care settings (University of Manchester)
29 Ј3,906,124 30 Ј4,793,607 Ј9,044,141
What information and
training do carers and
38
families need to provide
the best care for their
loved one who is dying?
5 Ј265,383 4 Ј78,027
Cascading knowledge about end of life care at home: the development and piloting of a training programme for those who help carers and a carer resource pack (University of Nottingham) Trial to evaluate the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in hospice home care (Cambridgeshire Community Services NHS Trust)
Carer involvement in the general hospital care of people with dementia: developing a framework for planning and implementing practices that meet the needs of patients, carers and staff. (University of Leeds)
Community-based
Volunteer-led Support for
10
Family Caregivers Caring for
a Relative or Friend with
Palliative and/or End-of-Life
Care Needs at Home (Co-
Care) (University Hospital
Southampton NHS
Foundation Trust).
0 Ј0 1 Ј28,153 Ј28,153
0 Ј0 1 Ј44,106 Ј44,106
Do people who are dying
and their carers and
39
families fare better if domestic support with
shopping, washing up,
laundry, etc, is provided?
What are the benefits, and
best ways, of ensuring
patients, carers, families
and friends are given
40
privacy and not restricted
in visiting hours when
palliative care is given in a
hospital, care home or
hospice?
What are the benefits of,
and best approaches to,
providing palliative care in
41
care homes, including symptom relief, emotional
and spiritual support
for patients, carers and
families?
Does practical advice for
concerns about housing,
42
finance and transport, etc, reduce anxiety for
carers and families and
increase their wellbeing?
0
0
0
0
Ј0
Ј0
Ј0
Ј0
0
2
0
0
Ј0
Ј243,476
Ј0
Ј0
Optimal NHS service delivery to care homes: a realist evaluation of the features and mechanisms that support effective working for the continuing care of older people in residential settings (University of Hertfordshire) Implementing evidence within the Welsh Care Home sector: investigating the impact of a guideline for stroke care (Bangor University)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
9 Ј2,187,716 7 Ј633,243 Ј3,064,435
3 Ј243,002 5 Ј561,447 Ј804,449
indirect Amount weak Amount total funding
Amount
Amount
interventional
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
direc t
Grant Titles
What are the best
approaches to support
carers
3 Ј382,455 2 Ј600,422 Ј982,877
and families of people at
Ј0
0
Ј0
0
43
the end of life where
there are substance and/or
alcohol addiction and/
or Domestic Violence
issues?
What are the best ways to
support children and
Young People when
someone close to them is
dying or has died? This
includes communicating
Ј0
Ј0
0
Ј0
0
Ј0
0
Ј0
0
44
with them about the
diagnosis and dying
process,
enabling them to talk
about their experience and
providing bereavement
support.
What are the best ways
Establishing supportive care
Behavioural Activation Therapy for Depression after
and times to meet the
needs for frail elders and
Stroke (BEADS): A feasibility randomised controlled
Ј2,887,627
Ј1,772,173
12
Ј921,756
11
Ј54,002
Ј139,696
emotional support needs
developing an intervention
pilot trial of a psychological intervention for post-stroke
45
of patients, carers and families, including one-on-
1
to address these in older adult acute medical settings.
1
depression (University of Nottingham)
one peer support,
(King's College London)
support groups and
professional counselling?
How can patients, carers
and families be
46
supported when the patient does not want their
0
Ј0
0
Ј0
0
Ј0
0
Ј0
Ј0
11
carers and families to know
their prognosis?
Should bereavement
support be made available
Ј0
Ј0
0
Ј0
0
Ј0
0
Ј0
0
47
to all bereaved people and, if so, how? Should GPs or
other professionals provide
bereavement visits?
How can the risk of intense
and long-lasting
Ј99,074
Ј99,074
3
Ј0
0
Ј0
0
Ј0
0
48
grief best be assessed and treated? Can this be
Ј503,343
Ј377,708
2
Ј125,635
Support: Bereavement
prevented through early
bereavement support?
What are the benefits of
bereavement support,
2
Ј0
0
Ј0
0
49
including preventing
depression and other
illness?
When is the best time to
introduce bereavement
support, and for how long?
Ј3,789
Ј0
0
Ј3,789
Should it be offered
1
Ј0
0
Ј0
0
50
before the death of a loved
one? How can this
support be catered to
individual needs, including
access to 24-hour support?
What are the benefits of
Cascading knowledge about
ACCESSCare: Advanced Cancer Care Equality Strategy
Ј567,072
Ј0
0
Ј484,564
5
Ј36,687
1
Ј45,821
Support: Training and staff support
setting up universal
end of life care at home: the
for Sexual minorities (King's College London)
training courses for
development and piloting of
51
volunteers, carers, families and complementary
1
a training programme for those who help carers and a
therapists who have
carer resource pack
regular contact with
(University of Nottingham)
palliative care patients?
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
Amount
Amount
interventional
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
direc t
Grant Titles
Neighbourhoods and Dementia: A mixed methods study (University of Manchester)
Care and communication between health professionals and patients affected by severe or chronic illness in community care settings: A qualitative study of care at the end of life (University of Nottingham).
The experiences of community health professionals following their involvement in providing palliative care to a child with cancer within the family home (Birmingham Children's Hospital NHS Foundation Trust).
CAPE study. Community cAre Pathways at the End of life: mapping the pathways to improve care (NHS Cambridgeshire and Peterborough CCG).
19 Ј2,767,161 12 Ј1,137,324 Ј5,318,973
Are hospices, hospitals and
care homes providing
adequate staff training to
deliver specialist
palliative care, and to what
52
extent does funding
affect this? How can high
quality trained staff
be ensured no matter
where the care is being
delivered?
1
Ј321,796
10
Ј1,092,692
Pain assessment and management for patients with advanced dementia nearing the end of life (Queen's University Belfast) The Marie Curie Dementia Research Programme: developing an intervention to improve end of life care in advanced dementia (UCL) Both sides of the fence: using action research to improve end of life care for prisoners (University of Lancaster)
ACCESSCare: Advanced Cancer Care Equality Strategy for Sexual minorities (King's College London)
Compassion By Design (Royal College of Art)
Evaluation of the MND awareness tool within primary
care (University of Sheffield)
12
An investigation of the Hospital Elder Life Program (HELP) system of care in NHS acute trusts to prevent delirium (Bradford Teaching Hospitals NHS Foundation Trust)
1 Ј30,082 0 Ј0 Ј30,082
Ј0
0
Ј0
0
What are the benefits of all
health and social care
53
staff having training in bereavement awareness
and support? Is this
possible?
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
direc t Amount
interventional Amount
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
The use of smartphone technology to reduce morbidity and mortality in ALS (Kings College London)
2012 AIIHPC Doctoral Fellowship: An organisational case study of transition to adult services by young people with life-limiting conditions in Ireland (Queen's University Belfast) Identifying patients who would benefit from palliative care, irrespective of diagnosis: the development and feasibility testing of a primary care-based intervention (University of Edinburgh)
10 Ј390,521 10 Ј1,169,721 Ј2,029,879
Service use: Care coordination
What are the best ways to
facilitate
communication across
54
services and between healthcare professionals,
including effective IT
systems, team meetings
and remote technology?
1 Ј4,988
6 Ј464,649
Both sides of the fence: using action research to improve end of life care for prisoners (University of Lancaster) The adaptation and validation of an assessment tool to identify the palliative care needs of people with irreversible idiopathic interstitial lung disease for use in every day clinical practice (De Montfort University) Improving health outcome for young people with long term conditions: the role of digital communication in current and future patient-clinician communication for NHS providers of specialist clinical services (The LYNCs study) (University of Warwick)
Assisted Living Technologies for Older People at Home:
creating a knowledge base for businesses and
commissioners about falls and dementia patients
(University of Leeds)
Since patients are often
The Production And Self-Production Of Model Patients
1 Ј297,663 3 Ј159,232 Ј458,310
seen by a variety of
Through Health Information Technology (IT). (University
Ј1,415
55
professionals and services, would care improve if
0
Ј0
1
of Sussex) 13
patients carried their own
medical notes?
What are the benefits of
Supportative Care in the
Both sides of the fence: using action research to
8 Ј767,907 22 Ј2,366,567 Ј3,239,659
increasing the number
of palliative clinical
56
nurses/nurse specialists in
hospitals, GP surgeries,
nursing homes and other
1
Ј37,066
Community for People Living with Advanced Liver Disease: a feasibility study (University of Edinburgh)
1
Ј68,119
improve end of life care for prisoners (University of Lancaster)
settings?
Both sides of the fence:
6 Ј1,096,140 7 Ј1,961,509 Ј3,125,768
Who should be part of the
using action research to
Ј0
0
Ј68,119
57
care team (such as chaplains, occupational
1
improve end of life care for prisoners (University of
therapists, GPs, etc)?
Lancaster)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
Question Number Theme interventional Amount direc t Amount
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
When is it appropriate to
receive care virtually
(such as via Skype or video-
58
phone calls)? What are the benefits and
potential harms for
patients, carers and
families?
Community-based Volunteer-led Support for Family Caregivers Caring for a Relative or Friend with Palliative and/or End-of-Life Care Needs at Home (CoCare) (University Hospital Southampton NHS Foundation Trust). Telehealth in Motor Neurone Disease: the TiM trial. A randomised controlled pilot study of the use of the TiM system to deliver highly specialised care to patients and carers of those living with motor neurone disease (University of Sheffiled). The use of smartphone technology to reduce morbidity and mortality in ALS (King's College London)
3 Ј89,263 8 Ј1,076,273
Telehealth in Motor Neurone Disease (University of Sheffield) Development and pilot evaluation of a web-supported programme of Constraint Induced Therapy following stroke (LifeCIT) (Solent NHS Trust) Assisted Living Technologies for Older People at Home: creating a knowledge base for businesses and commissioners about falls and dementia patients (University of Leeds) MICA: Development of a software application for detection and monitoring of attentional deficits in delirium (University of Edinburgh) Open-architecture telehealth platform for COPD (University of Oxford). Open-architecture telehealth platform for COPD (University of Oxford). Home-based monitoring for the early detection of severe neutropenia in patients receiving chemotherapy to enable intervention and avoidance of adverse events (Philips Electronics UK Limited).
25 Ј3,750,475 18 Ј6,241,558 Ј11,157,569
Understanding the communication processes engaged in cancer telephone helpline work: A qualitative case study (University of Southampton)
2012 AIIHPC Doctoral Fellowship: An organisational
case study of transition to adult services by young
14
people with life-limiting conditions in Ireland (Queen's
University Belfast)
6 Ј1,221,193 5 Ј1,019,637 Ј2,768,845
What are the best ways to
make sure there is
continuity for patients at
the end of life, in terms
of the staff that they have
59
contact with, and does
this improve quality of
palliative care? Would
having a designated case
coordinator improve this
process?
0 Ј0 5 Ј528,015
Carer and patient-led development of recommendations for people with dementia returning home from hospital: understanding what is important (University Hospitals Coventry and Warwickshire NHS Trust) Comorbidity and dementia: improving healthcare for people with dementia. (CoDem) (University of Hertfordshire) Optimal NHS service delivery to care homes: a realist evaluation of the features and mechanisms that support effective working for the continuing care of older people in residential settings (University of Hertfordshire)
What are the best care
packages for patients,
carers, family and staff
60
which combine healthcare
and social care and take
individual prognosis into
consideration?
An evaluation of the effectiveness of care bundles as a means of improving hospital care and reducing hospital readmission for patients with chronic obstructive pulmonary disease (COPD) (University of Bristol)
1 Ј180,104 3 Ј213,463
Enhanced integration of primary and secondary health systems and patient empowerment through improved continuity of patient care and clinical handover (University of Birmingham). Screening for depression in South Asian patients with End Stage Renal Disease: An evaluation of the Beck Depression Inventory-II and the Patient Health Questionnaire-9 (East and North Hertfordshire NHS Trust) Why do stroke patients not receive the recommended amount of therapy? (Bradford Teaching Hospitals NHS Foundation Trust) Comorbidity and dementia: improving healthcare for people with dementia. (CoDem) (University of Hertfordshire)
16 Ј2,674,282 28 Ј3,948,895 Ј7,016,741
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
direc t Amount
Amount
interventional
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
Much palliative and end of
life care is provided by
61
charities. What are the benefits and risks of this
and is it sustainable and
efficient?
Is there evidence that
some volunteer services
62
that provide support for patients, carers and
families reduce the need
for paid trained staff?
Do people at the end of life
who receive support
from volunteers, carers,
63
family or friends, have
better end of life
experiences than those
who do not?
0
0
0
Ј0
Ј0
Ј0
1 Ј52,469
3 Ј50,068
3 Ј131,757
Community-based Volunteer-led Support for Family Caregivers Caring for a Relative or Friend with Palliative and/or End-of-Life Care Needs at Home (Co-Care) (University Hospital Southampton NHS Foundation Trust). Service user feedback as a means of redeveloping a large scale survey instrument (University of Wales, Cardiff) Promoting informed decision making and effective communication through advance care planning for people living with dementia and their family carers (Queen's University Belfast) Optimising palliative care for older people in the community: development and evaluation of a new short term collaborative service (King's College London) Community-based Volunteer-led Support for Family Caregivers Caring for a Relative or Friend with Palliative and/or End-of-Life Care Needs at Home (Co-Care) (University Hospital Southampton NHS Foundation Trust). Costs and effectiveness of UK palliative care day services: a three centre mixed methods study of impact upon patients and family carers (University of Ulster) End of life care: the experiences and needs of lesbian, gay, bisexual and trans (LGBT) elders (University of Nottingham) 15
3 Ј52,508 1 Ј308,611 Ј413,588
6 Ј972,251 3 Ј559,650 Ј1,581,969
2 Ј355,114 3 Ј1,335,233 Ј1,822,104
0 Ј0 1 Ј1,667 Ј210,071
How can patients, carers
Service use: Accessing services
and families easily
access care services,
equipment and statutory
64
welfare benefits? How can
people learn what
resources are available and
limit the time it takes
to access these?
How can palliative care
information and services
65
be made more accessible
to people whose first
language is not English?
0
0
Ј0
Ј0
1 Ј39,619
1 Ј208,404
Randomised controlled trial economic and process evaluation of domiciliary welfare rights advice for socioeconomically disadvantaged older people recruited via primary Health Care (DO-WELL Trial) (University of Cambridge) Screening for depression in South Asian patients with End Stage Renal Disease: An evaluation of the Beck Depression Inventory-II and the Patient Health Questionnaire-9 (East and North Hertfordshire NHS Trust)
1 Ј99,758 2 Ј44,436 Ј183,813
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
Question Number Theme interventional Amount direc t Amount indirect Amount weak Amount total funding
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
C-CHANGE: Delivering high
Identifying patients who would benefit from palliative
quality and cost-effective
care, irrespective of diagnosis: the development and
care across the range of
feasibility testing of a primary care-based intervention
complexity for those with
(University of Edinburgh)
advanced conditions in the
last year of life (King's
End of life care in advanced Chronic Obstructive
College Hospital NHS
Pulmonary Disease (COPD): identifying, understanding
Foundation Trust)
and meeting the changing care and support needs of
patients and their carers (University of Cambridge)
A feasibility study of early
identification, assessment
Changing patterns of place of cancer deaths in children
and support for informal
and young people, 1984-2010 (King's College London)
carers in primary care
(University of Edinburgh)
Service user feedback as a means of redeveloping a
large scale survey instrument (University of Wales,
Both sides of the fence:
Cardiff)
using action research to
improve end of life care for
The effect of geography and socioeconomic status on
prisoners (University of
health care costs at the end of life: implications for
Lancaster)
resource allocation and expenditure projections in
(University of Glasgow)
4 Ј528,256 12 Ј1,387,084 34 Ј4,209,251 41 Ј6,672,691 Ј12,797,282
How can access to
palliative care services be
66
improved for everyone
regardless of where they
are in the UK?
Community-based Volunteer-led Support for Family Caregivers Caring for a Relative or Friend with Palliative and/or End-of-Life Care Needs at Home (Co-
The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL) The MARQUE project: Managing Agitation and Raising
Care). (University Hospital
QUality of Life. A project to improve quality of life in
Southampton NHS
people with moderate or severe dementia (UCL)
Foundation Trust)
Trial to evaluate the impact of a Carer Support Needs
Assessment Tool (CSNAT) intervention in hospice home
care (Cambridgeshire Community Services NHS Trust)
16
Telehealth in Motor Neurone Disease (University of Sheffield)
Dementia and imagination: connecting communities and developing well-being through socially engaged visual arts practice (Bangor University)
Getting down to coping' On-line self-management after treatment for prostate cancer: a feasibility study (Sussex Community NHS Trust)
Improving access to high quality primary care for socioeconomically disadvantaged older people in rural areas: a mixed method study (University of East Anglia) Identifying patients who would benefit from palliative care, irrespective of diagnosis: the development and feasibility testing of a primary care-based intervention (University of Edinburgh)
0 Ј0 4 Ј516,924 9 Ј1,037,800 0 Ј0 Ј1,554,724
What are the best ways of
providing palliative care
outside of `working hours'
to avoid crises and help
patients to stay in their
67
place of choice? This includes symptom
management, counselling
and advice, GP visits and
24-hour support, for
patients, carers and
families?
Randomised controlled trial of hospital at home compared to standard inpatient management of patients with an acute exacerbation of chronic obstructive pulmonary disease (AECOPD), triaged for hospital admission by Accident and Emergency and with low mortality risk according to the novel DECAF score. (Northumbria Healthcare NHS Foundation Trust) Mixed methods analysis of the London Hyperacute Stroke System: identifying lessons on 24/7 working (METRO-24/7) (University College London Hospitals NHS Foundation Trust)
The future of 24/7 care: investigating the links between staffing levels patient access and inequalities in health outcomes (University of York)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
Amount
Amount
interventional
Question Number Theme
11 Ј1,422,954 17 Ј2,605,826 Ј4,111,741
PSP Question (highlighted yellow if prioritised to a top ten question)
68
Are outcomes (for
example, symptom control
and
incidental prolonging of
life) better for terminally
ill patients the sooner
palliative care is introduced
and services are accessed?
How can people who live
alone and do not
have friends or family
69
nearby receive adequate
palliative care, particularly
if they wish to stay in
their homes?
0
0
Ј0
Ј0
Grant Titles
0
3
direc t
Ј0
Ј82,961
Grant Titles A MULTICENTRE NON-BLINDED RANDOMISED CONTROLLED TRIAL TO ASSESS THE IMPACT OF REGULAR EARLY SPECIALIST PALLIATIVE CARE TREATMENT ON QUALITY OF LIFE IN MALIGNANT MESOTHELIOMA ­ `RESPECT-MESO' (Queen Alexandra Hospital) A study of quality of care needs for patients with idiopathic pulmonary fibrosis, and their carers, across disease trajectory (University of Wales, Cardiff) Telehealth in Motor Neurone Disease (University of Sheffield)
1 Ј17,731 0 Ј0 Ј17,731
17
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
Question Number Theme interventional Amount direc t Amount indirect Amount weak Amount total funding
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
Phase 2 randomised trial of early versus delayed future care planning for patients with advanced heart disease (University of Edinburgh)
Understanding the experiences and multi- dimensional needs of people with major stroke: a mixed methods study (University of Edinburgh) Deciding not to dialyse in advanced chronic kidney disease - Health related quality of life, decision making, costs and impact on carers (Queen's University Belfast)
A study of quality of care needs for patients with idiopathic pulmonary fibrosis, and their carers, across disease trajectory (University of Wales, Cardiff)
Identifying patients who would benefit from palliative care, irrespective of diagnosis: the development and feasibility testing of a primary care-based intervention (University of Edinburgh)
Service use: Place and type of care 1 Ј95,581 13 Ј1,762,238 47 Ј4,012,526 29 Ј5,690,385 Ј11,560,730
What are the best ways to
begin and deliver
palliative care for patients
with non-cancer
diseases (such as chronic
70
obstructive pulmonary
disease (COPD), heart
failure, motor neurone
disease (MND), AIDS,
multiple sclerosis, Crohn's
disease and stroke)?
End of life care in advanced Chronic Obstructive Pulmonary Disease (COPD): identifying, understanding and meeting the changing care and support needs of patients and their carers (University of Cambridge) Initiating End of Life Care in Stroke: clinical decisionmaking around prognosis (University of Wales, Bangor) The adaptation and validation of an assessment tool to identify the palliative care needs of people with irreversible idiopathic interstitial lung disease for use in every day clinical practice (De Montfort University) A Programme for ALS Care in Europe (ALS-CarE) (King's College London) 18 The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL)
The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL)
EFFECTIVE HOME SUPPORT IN DEMENTIA CARE: COMPONENTS, IMPACT AND COSTS OF TERTIARY PREVENTION (Pennine Care NHS Foundation Trust)
Using Conversation Analysis in the Differential Diagnosis of Memory Problems: a pilot study (Sheffield Teaching Hospitals NHS Foundation Trust)
Promoting Effective And Rapid Stroke care (PEARS) (Newcastle Upon Tyne Hospitals NHS Foundation Trust)
1 Ј190,082 3 Ј287,007 18 Ј2,880,005 22 Ј2,809,807 Ј6,166,901
Does earlier palliative
intervention for patients
with chronic obstructive
pulmonary disease
(COPD) improve quality of
life? When is the right
71
time to intervene to
improve understanding of
prognosis, exercise
tolerance, overall
progression
and access to pulmonary
rehabilitation?
Trajectories in advanced chronic obstructive pulmonary disease (COPD): determining a new paradigm for the care and support of patients and their informal carers at the end of life. (University of Cambridge)
Palliative care needs in patients with heart failure (University of Glasgow) COPD in primary care: from case finding to improving patient outcomes (Birmingham Community Healthcare NHS Trust) Longitudinal determination of the role of inactivity in skeletal muscle dysfunction in individuals with chronic obstructive pulmonary disease (Cambridge University Hospitals NHS Foundation Trust) A randomised placebo-controlled trial investigating the effect of bilateral quadriceps neuromuscular electrical stimulation on exercise capacity in patients with severe COPD. (King's College London)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
direc t Amount
Amount
interventional
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
What are the core
palliative care services that
72
should be provided no
matter what the patients'
diagnosis are?
What are the benefits for
patients, carers and
families of day hospices
and day therapies such
as complementary
therapies, rehabilitation
73
and physical exercise? Do
they help people stay more
independent? When are
the best times to refer
palliative patients to these
services and who
benefits most?
0 Ј0 8 Ј1,520,480 17 Ј2,111,189 26 Ј3,330,556 Ј6,962,225
0
Ј0
5 Ј628,219
CAPE study. Community cAre Pathways at the End of life: mapping the pathways to improve care. (NHS Cambridgeshire and Peterborough CCG)
C-CHANGE: Delivering high quality and cost-effective care across the range of complexity for those with advanced conditions in the last year of life (King's College Hospital NHS Foundation Trust)
17 Ј2,293,817 9 Ј1,441,011 Ј4,363,047
Identifying patients who would benefit from palliative care, irrespective of diagnosis: the development and feasibility testing of a primary care-based intervention (University of Edinburgh)
BRIGHTLIGHT on End of Life care for young adults ­ what do young adults and their families need and how can it best be delivered? (UCL)
Costs and effectiveness of UK palliative care day services: a three centre mixed methods study of impact upon patients and family carers (Ulster University) Costs and effectiveness of UK palliative care day services: a three centre mixed methods study of impact upon patients and family carers (Ulster University)
Dementia and imagination: connecting communities and developing well-being through socially engaged visual arts practice (Bangor University)
"Physical activity for non-ambulatory stroke survivors
living at home:
developing a feasible and acceptable intervention"
(Glasgow Caledonian)
19
PRIDE - Promoting Independence in Dementia (UCL)
Clinical and cost effectiveness of physiotherapy and occupational therapy versus no therapy in mild to moderate Parkinson's disease: a large pragmatic randomised controlled trial (PD REHAB) (University of Birmingham)
What is the clinical and cost-effectiveness, and acceptability, of Wii Sports for improving dominant arm function after stroke? (Royal Cornwall Hospitals NHS Trust)
The delivery of chemotherapy at home: an evidence synthesis (University of York)
Development and preliminary testing of strategies to enhance routine physical activity in care homes ) (Bradford Teaching Hospitals NHS Foundation Trust)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
Question Number Theme interventional Amount direc t Amount indirect Amount weak Amount total funding
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
Cascading knowledge about end of life care at home: the development and piloting of a training programme for those who help carers and a carer resource pack (University of Nottingham)
Development and Evaluation of an Intervention to Assist Lay Carers to Provide Physical Care to family members with Cancer at End-of-Life (NHS Central Manchester CCG) Improving the Management of Pain from Advanced Cancer in the Community (IMPACCT) (Leeds Teaching Hospitals NHS Trust)
Exploration of factors associated with place of care and place of death in patients with haematological malignancies (University of York)
Trial to evaluate the impact of a Carer Support Needs Assessment Tool (CSNAT) intervention in hospice home care (Cambridgeshire Community Services NHS Trust)
1 Ј45,820 10 Ј1,520,096 21 Ј3,872,404 13 Ј1,274,635 Ј6,712,955
What are the benefits, and
best ways, of providing
care in the patient's home
74
and how can home care be maintained as long
as possible? Does
good coordination of
services affect this?
Randomised controlled trial of hospital at home compared to standard inpatient management of patients with an acute exacerbation of chronic obstructive pulmonary disease (AECOPD), triaged for hospital admission by Accident and Emergency and with low mortality risk according to the novel DECAF score. (Northumbria Healthcare NHS Foundation Trust) Telehealth in Motor Neurone Disease: the TiM trial. A randomised controlled pilot study of the use of the TiM system to deliver highly specialised care to patients and carers of those living with motor neurone disease. (University of Sheffield)
Assistive Technology and Telecare to maintain
Independent Living At home for people with dementia:
20
The ATTILA Trial (South London and Maudsley NHS
Foundation Trust)
Behavioural Activation Therapy for Depression after Stroke (BEADS): A feasibility randomised controlled pilot trial of a psychological intervention for post-stroke depression (University of Nottingham)
A multi-centre randomised controlled trial of Comprehensive Geriatric Assessment in an admission avoidance hospital at home setting (University of Oxford)
The delivery of chemotherapy at home: an evidence synthesis (University of Sheffield)
CAPE study. Community cAre Pathways at the End of life: mapping the pathways to improve care. (NHS Cambridgeshire and Peterborough CCG)
0 Ј0 6 Ј750,107 19 Ј3,310,742 14 Ј3,026,819 Ј7,087,668
What are the pros and cons
of receiving palliative
care in different
environments, including at
75
home, in a hospice,
hospital or care home? Are
there certain people and
conditions that each are
best for?
The Marie Curie Dementia Research Programme: developing an intervention to improve end of life care in advanced dementia (UCL) Exploration of factors associated with place of care and place of death in patients with haematological malignancies (University of York) Advance Decisions: Informing implementation strategies through interdisciplinary and cross-national dialogue (University of York) A study to understand and optimise community hospital ward care in the NHS (University of Leeds)
Evaluation of patient preferences for and cost effectiveness of community intravenous antibiotic services (Leeds Teaching Hospitals NHS Trust)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]uk
indirect Amount weak Amount total funding
direc t Amount
Amount
interventional
Question Number Theme
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
Palliative care needs in patients with heart failure (University of Glasgow)
22 Ј3,708,287 34 Ј3,778,822 Ј8,044,608
What are the best models
76
of palliative care in an acute setting, such as a
hospital?
0
Ј0
4 Ј557,499
Improving the acute hospital care experience from admission through to discharge for older patients with cognitive impairment and their carers / families. (Norfolk and Norwich University Hospitals NHS Foundation Trust) An investigation of the Hospital Elder Life Program (HELP) system of care in NHS acute trusts to prevent delirium (Bradford Teaching Hospitals NHS Foundation Trust)
MICA: Development of a software application for detection and monitoring of attentional deficits in delirium (University of Edinburgh)
How can the spiritual
The Influence of Faith and Belief on the Formulation,
support needs of
Content and Operation of Health Law in the United
palliative care patients and
Kingdom (De Montfort University)
2 Ј31,828 1 Ј10,416 Ј55,199
1 Ј12,955
their carers and
Ј0
0
77
families best be met in a
way that is appropriate
for people of different
religions and people who
are not religious?
Supportative Care in the
A MULTICENTRE NON-BLINDED RANDOMISED
Community for People
CONTROLLED TRIAL TO ASSESS THE IMPACT OF
Living with Advanced Liver
REGULAR EARLY SPECIALIST PALLIATIVE CARE
Disease: a feasibility study
TREATMENT ON QUALITY OF LIFE IN MALIGNANT
(University of Edinburgh)
MESOTHELIOMA ­ `RESPECT-MESO' (Queen Alexandra
Hospital)
21
10 Ј1,229,762 6 Ј472,860 Ј2,217,897
Are some palliative care
approaches better than
others (eg holistic support,
78
coordinated care,
nurse-led care, early
intervention) and for
whom?
1 Ј37,066 5 Ј478,209
Investigating and improving signs and symptoms of chronic kidney disease through a dietetic-led integrated model of care in older people nearing end stage renal disease with the aim of improving patient-centred and medical outcomes in a cost efficient manner. (Imperial College Healthcare NHS Trust) Does early referral of patients with metastatic nonsmall cell lung cancer to UK specialist palliative care services make a difference in their quality of life or survival? Acronym: SPECIAL (Standard or PalliativE Care In Advanced Lung cancer) (University of Sheffield)
PATHWAYS: Pulmonary ArTerial Hpertension - Workings with AnxietY and Stress. A randomised pilot study (University Hospitals Bristol NHS Foundation Trust)
Telehealth in Motor Neurone Disease (University of Sheffield)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
Question Number Theme interventional Amount direc t Amount indirect Amount weak Amount total funding
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
What are the benefits of
occupational, beauty
and diversion therapies
(such as mindfulness,
79
meditation, art, dance and
gardening) for
palliative care patients?
How and where are these
best provided?
What are the benefits of
alternative therapies
(such as homeopathy) or
complementary
80
therapies (such as
acupuncture) for palliative
care
patients? How and where
are these best provided?
0 Ј0 0 Ј0 3 Ј582,325 4 Ј862,789 Ј1,445,114
0 Ј0 11 Ј1,090,556 7 Ј722,794 15 Ј2,564,341 Ј4,377,691
"Does a breathlessness intervention service ('CBIS') reduce stress significantly more than usual care in breathless patients with advanced non-malignant disease and their carers? A phase II feasibility study." (Cambridge University Hospitals NHS Foundation Trust)
'New Thinking on Living with Dying': Research Network (University of Liverpool)
Why do stroke patients not receive the recommended amount of therapy? (Bradford Teaching Hospitals NHS Foundation Trust)
Dementia and imagination: connecting communities and developing well-being through socially engaged visual arts practice (Bangor University)
The arts in dementia care - A Critical Review of cultural and arts practices in dementia care in the UK (University of the Arts London)
Individual Cognitive Stimulation Therapy for dementia (iCST Trial) (UCL)
A feasibility study of a randomised controlled trial of an Arts for Health group intervention to support selfconfidence and psychological wellbeing following a stroke. (Royal Bournemouth and Christchurch Hospitals NHS Foundation Trust)
The development of a telephone based therapy for
people affected by primary and secondary progressive
MS (King's College London)
22
Can an arts based creative engagement intervention following stroke improve psychosocial outcomes? A feasibility trial of a creative engagement intervention for in-patient rehabilitation. (University of Dundee)
Can an occupational therapy intervention increase independence in activities of daily living in people who use homecare reablement services (University of Nottingham)
Music for the brain: Music and mindfulness intervention for the improvement of cognition and mood after stroke. (University of Glasgow)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
Question Number Theme interventional Amount direc t Amount indirect Amount weak Amount total funding
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
Understanding the experiences and multidimensional needs of people with major stroke: a mixed methods study (University of Edinburgh)
Palliative care needs in patients with heart failure (University of Glasgow) Deciding not to dialyse in advanced chronic kidney disease - Health related quality of life, decision making, costs and impact on carers (Queen's University Belfast)
Pain assessment and management for patients with advanced dementia nearing the end of life (Queen's University Belfast) The Marie Curie Dementia Research Programme: developing an intervention to improve end of life care in advanced dementia (UCL) End of life care in advanced Chronic Obstructive Pulmonary Disease (COPD): identifying, understanding and meeting the changing care and support needs of patients and their carers (University of Cambridge)
Supporting Excellence in End of life care in Dementia (SEED programme) (Northumbria Healthcare NHS Foundation Trust) C-CHANGE: Delivering high quality and cost-effective care across the range of complexity for those with advanced conditions in the last year of life (King's College Hospital NHS Foundation Trust) A study of quality of care needs for patients with idiopathic pulmonary fibrosis, and their carers, across disease trajectory (University of Wales, Cardiff) Identifying patients who would benefit from palliative care, irrespective of diagnosis: the development and feasibility testing of a primary care-based intervention (University of Edinburgh) Initiating End of Life Care in Stroke: clinical decisionmaking around prognosis (University of Wales, Bangor)
Assessing palliative care
The adaptation and validation of an assessment tool to
needs in Parkinson's
identify the palliative care needs of people with
Understanding Dying 6 Ј758,347 25 Ј3,548,693 93 Ј12,977,642 72 Ј8,589,421 Ј25,874,103
How can we best
determine a person's
palliative care needs,
particularly for patients
81
with noncancer diseases such as motor
neurone disease
(MND), Parkinson's
disease, dementia and
heart failure?
Disease: Developing a needs assessment tool (University of Hull) Phase 2 randomised trial of early versus delayed future care planning for patients with advanced heart disease (University of Edinburgh)
irreversible idiopathic interstitial lung disease for use in every day clinical practice (De Montfort University) Evaluation of the clinical and cost-effectiveness of Short-term Integrated Palliative Care Services (SIPC) to OPTimise CARE for people with advanced longterm Neurological conditions (OPTCARE Neuro) (King's College London) A Programme for ALS Care in Europe (ALS-CarE) (King's College London)
23
The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL)
The MARQUE project: Managing Agitation and Raising QUality of Life. A project to improve quality of life in people with moderate or severe dementia (UCL)
COPD in primary care: from case finding to improving patient outcomes (Birmingham Community Healthcare NHS Trust)
Care for Late Stage Parkinsonism (UCL)
Why do stroke patients not receive the recommended amount of therapy? (Bradford Teaching Hospitals NHS Foundation Trust)
EFFECTIVE HOME SUPPORT IN DEMENTIA CARE: COMPONENTS, IMPACT AND COSTS OF TERTIARY PREVENTION (Pennine Care NHS Foundation Trust)
Carer and patient-led development of recommendations for people with dementia returning home from hospital: understanding what is important (University Hospitals Coventry and Warwickshire NHS Trust)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
Question Number Theme interventional Amount direc t Amount indirect Amount weak Amount total funding
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
Dementia and imagination: connecting communities and developing well-being through socially engaged visual arts practice (Bangor University)
Risk Communication in Dementia Care (Ulster University)
2012 Doctoral Fellowship: Deactivation of Implantable Cardioverter Defibrillators at end of life: An exploratory study of heart failure patients', carers' and healthcare Prof.essionals' perspectives (Ulster University)
Psychosocial Therapy to Benefit Patients with Parkinson's-related Dementia: A Feasibility and Exploratory Pilot Study (ManchesterMental Health and Social Care Trust)
81
Telehealth in Motor Neurone Disease: the TiM trial. A
randomised controlled pilot study of the use of the TiM
system to deliver highly specialised care to patients and
carers of those living with motor neurone disease.
(University of Sheffield)
A randomised controlled trial in patients with respotory muscle weakness due to MND of the NeuRX RA/4 diaphragm pacing trial (University of Sheffield)
Decision-making concerning eating and drinking for
people with progressive neurological disease with and
without decision-making capacity: patient, public,
professional and family perspectives (University of
Cambridge)
24
The use of smartphone technology to reduce morbidity and mortality in ALS (King's College London)
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]
indirect Amount weak Amount total funding
Question Number Theme interventional Amount direc t Amount
PSP Question (highlighted yellow if prioritised to a top ten question)
Grant Titles
Grant Titles
Do people with various
types of terminal cancer
82
have different palliative care needs? If so, what
are the best ways of
managing their symptoms?
What are the signs that a
person will die in
the next few days and how
83
can detection of
these signs be improved?
How can families be
made aware?
0 Ј0 1 Ј67,946
0 Ј0 8 Ј786,843
A MULTICENTRE NON-BLINDED RANDOMISED CONTROLLED TRIAL TO ASSESS THE IMPACT OF REGULAR EARLY SPECIALIST PALLIATIVE CARE TREATMENT ON QUALITY OF LIFE IN MALIGNANT MESOTHELIOMA ­ `RESPECT-MESO' (Queen Alexandra Hospital)
C-CHANGE: Delivering high quality and cost-effective care across the range of complexity for those with advanced conditions in the last year of life (King's College Hospital NHS Foundation Trust)
A study of quality of care needs for patients with idiopathic pulmonary fibrosis, and their carers, across disease trajectory (University of Wales, Cardiff)
26 Ј4,228,216 15 Ј2,223,735 Ј7,238,794
Pilot feasibility randomised trial of a novel nonpharmacological intervention for the management of the respiratory distress symptom cluster (breathlessness, cough, fatigue) in patients with advanced lung cancer (University of Manchester)
BRIGHTLIGHT on End of Life care for young adults ­ what do young adults and their families need and how can it best be delivered? (UCL)
Changing patterns of place of cancer deaths in children and young people, 1984-2010 (King's College London)
ACCESSCare: Advanced Cancer Care Equality Strategy for Sexual minorities (King's College London)
Resources for Living (R4L) Pilot: Exploring the Potential
25
of Progressive Cuisine for Quality of Life Improvement
for Head and Neck Cancer Survivors (Newcastle Upon
Tyne Hospitals NHS Foundation Trust)
Initiating End of Life Care in Stroke: clinical decisionmaking around prognosis (University of Bangor, Wales)
0 Ј0 1 Ј47,244 Ј115,190
LEGEND: Highlighted yellow: top ten; Text Blue: funded by Marie Curie; Text Green: funded by the 4 devolved governmental funders (NIHR, CSO, HSCPHD, HCRW); Text Orange/Red: funded by Research Councils; Text Black: funded by other charitable funders; Number in red: Not addressed by an up-to-date systematic review If you would like more specific information on any of the PeolcPSP questions, please contact [email protected]

AC Planning

File: e-psp-question-highlighted-yellow-if-prioritised-to-a-top-ten.pdf
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Author: Florence Todd Fordham
Published: Wed Nov 23 10:43:16 2016
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